All quiet on the Western front

I apologize for not writing for a bit – I was in a chemo fog until tonight.

On Tuesday, Jodi joined me for the full day of my infusion. Linnea unfortunately couldn’t make it (schedule glitch) but I got to meet Tom! He was on California time and his appointment wasn’t until the afternoon, but he kindly came early to meet me while I was still conscious.

Tons of good things that came from Tom’s presence, not just for me but from others who got to talk with him in the waiting room. He’s really smart and knowledgeable about the pipeline of drugs. He is optimistic and easy to talk with. It was like he was making everyone feel better.

Tom and me Oct 2014

And – he agreed to stay while I got my CT results. As you might imagine, if the doctor gives you news that stuns you, you still have to function and ask the doctor relevant questions before he moves onto the next patient. Sometimes, there is a decision to be made in that moment. I wasn’t too worried about the scan, but I have been surprised before. Tom agreed to go to my appointment with Jodi and me so that, if necessary, Jodi could help me deal with my stunned state (I get the feeling that Jodi can handle just about any emotional situation) while Tom asked questions and gathered data.

But, all good – the scan showed stable results! Tom moved onto his next thing and Jodi stayed with me for the rest of the day (no small feat – involves seeing me in a state I don’t share with the general public) and drove me home.

I’m so grateful for that they were both there in person and that you were with me through the wait. Thank you thank you!!!!

Love,
Marie

Six degrees of separation. Or fewer.

Thank you for your prayers for my CT scan last Thursday. All went smoothly, and I get the results on Tuesday.

Rather than feeling anxious, I’m so excited about Tuesday. Yes, I get the scan results AND it is chemo day, but that is overshadowed by the richness of relationship promising to infuse that day.

Jodi is driving me to my appointment and staying with me – always wonderful to spend time with her. And then…Tom and Linnea will drop by.

I met Tom via my blog, back when he was diagnosed with stage 3 colorectal cancer. I met Linnea via her blog. Linnea is living with lung cancer, thanks to a drug that Tom helped discover. Isn’t that just so cool? I absolutely love that we are all connected. Both of them inspire me and enrich my life, and it thrills me to learn that they are connected to each other, too.

None of us have met in person. But on Tuesday, Tom will be at Dana Farber for a meeting (with my doctor!), Linnea is able to stop by, and I have an appointment there. So we will all get to meet together at the same time, live and in person, the old-fashioned way. I’m kind of giddy.

I am often conscious that my life is different because of my diagnosis. But then I consider events like this, where I might never have experienced these kinds of connections, and I feel so blessed.

Love,
Marie

P.S. I also feel good that, out of all the doctors in the country, Tom selected my oncologist to get a second opinion. Tom is really smart and on top of all this, and I kind of bumble through it, so it is like finding out I am holding a golden nugget.